He him if you’re wondering. Anonymous alt account. The name is from a random username generator and I found it funny (ironically) considering the reason I made this account.
- 12 Posts
- 10 Comments
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•There's no error-free way of offering advice to a disabled person. So here's what you can ask instead.2·27 days agoIt’s also funny how every expert I talk to think that the main source if my symptoms is in their specialty field
Lol same that’s why I stopped listening to their theories until we do the tests. It’s just upsetting for no reason. the ENT thought I may have menieres, I waited one week to do the test and one more week to see the results and it turns out it wasn’t that. We still don’t know what it is, but it’s not menieres lol
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•Be honest what are your thoughts on my living situation?4·1 month agoThat’s a great way to put it lol I’ll have to remember that one, about looking after the house.
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•Men with long hair. What kind of cut do you take an appointment for at the stylist?2·2 months agoThat’s exactly it, you don’t select the actual style that you want, but based on how long your hair is (for womens cuts) or if you want additional treatments that all have non-descriptive names lol.
You’re right, I just picked the one mens haircut option they have and they’ll deal with it lol
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•Men with long hair. What kind of cut do you take an appointment for at the stylist?3·2 months agoYou can’t stop progress lol, if you don’t know exactly what you want beforehand good luck i guess!
If nothing else these tests confirm that I’m doing fine otherwise lol. Just not sure what I’ll do after the MRI if there’s nothing else to test for but I’ll cross that when I get there.
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•I don't even know what the problem is anymore3·3 months agoI’ve thought about it before and it’s probably going to be my next step. An acquaintance gave me some of their traditional medicine and I would have taken it, but it contains ingredients that are natural blood thinners and I’m not sure how it’ll interact with my thinners on top of that. I know someone who does hypnosis maybe I’ll ask them if they can see me lol. It’s just hard to get out of the house because even if I’m doing better right now I’m pretty sure symptoms will come back as soon as I do physical activity again. We’ll see how the walk goes hopefully later this week.
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•I don't even know what the problem is anymore3·3 months agoThank you comrade!
CurseAvoider@lemmygrad.mlOPto Comradeship // Freechat@lemmygrad.ml•That's right, the saga continues3·3 months agoThank you comrade. I’m not worried yet because it’s been going on for a year and while it has gotten worse it’s also stabilized and declining very slowly, but right now I’m also completely in the dark as much as my doctors if we will even find the problem lol. For now all I can do is be optimistic and just go to the exams as hard as it is to get there.
CurseAvoider@lemmygrad.mlto Comradeship // Freechat@lemmygrad.ml•My copy of Chairman Mao’s quotations has a weird red residue developing on the cover2·3 months agoJust cheap printing. It’s the aliexpress version isn’t it? On mine the disc behind his portrait is completely gone already.
Exactly every disability is different of course but in my case I like being left alone when I’m feeling sick in the first place and there just isn’t anything that helps. Antiemetics don’t even do anything. So if I’m having an episode the best thing to do is just let me manage it and also not talk to me because I’m not listening anyway in the moment lol. At best just say “let me know if you need anything” and leave it at that.
Sometimes we don’t even know the extent of our triggers or disability! I just ate some pineapple (to be fair it was a lot of pineapple lol) and found out that’s a trigger just now. I didn’t know that before.
I wanted my list of questions to be stuff I wish people would ask me, and also broad enough to fit in most situations, not just with friends. It’s good to ask “how can I make this more accessible for you” or “what should I do if you have an episode”, “what are your triggers so I can avoid them”… but you shouldn’t ask because you feel obligated to, but because you want to.